A little bit about The ILC Foundation.

The “ILC” abbreviation is “Improving the Lives of the Community”  living with Ehlers-Danlos Syndromes, and related conditions including chronic pain.

To help Canadians overcome the challenges of living with Ehlers-Danlos Syndromes and related conditions, including chronic pain through knowledge-sharing resources, awareness, education, wellness support and research to find cures.

To inspire hope and contribute to the health and well-being of Canadians living with Ehlers-Danlos Syndromes and related conditions including chronic pain.

To inspire hope and contribute to the health and well-being of Canadians living with Ehlers-Danlos Syndromes and related conditions including chronic pain.

The ILC is a CRA registered charity serving the Canadian Ehlers-Danlos Syndromes (EDS) and chronic pain community. We are the national advocate for those affected by this hereditary and difficult disease. Established in 2010, we have worked collaboratively with regional and international organizations to bring health care research, education and clinical care together to ensure those affected by EDS have access to the latest advances in care.

• Developing patient education and bring patients together in peer to peer groups
• Granting research funding requests and facilitating grant requests for external research funding
• Increasing awareness of EDS throughout annual campaigns and activities in Canada
• Advocacy